NEC Health publishes new white paper on health data partnerships and real-world evidence
NEC Health has released a new white paper, Unlocking the Power of Registry Data: How health data partnerships can drive safer, smarter patient care, which explores how structured access to registry data can transform the use of real-world evidence in medical research, innovation and patient safety.
Healthcare is producing data on an unprecedented scale, yet as much as 97% remains unused. Among the most valuable and underused sources is health registry data. Registries systematically collect and analyse information on surgical procedures, device performance and patient outcomes. While registries have long supported clinicians, access for manufacturers has historically been limited by fragmented systems, legal barriers and governance challenges.
The white paper examines how health data partnerships are beginning to change this picture. By creating secure, structured frameworks for sharing registry data, NEC Health’s Registries & RWE team is helping to unlock high-quality, longitudinal real-world evidence that supports product development, regulatory submissions, and post-market surveillance. The approach gives research and clinical teams faster, more reliable access to real-world evidence while ensuring data remains securely governed and ethically managed.
Drawing on NEC Health’s experience with the National Joint Registry, the largest orthopaedic registry in the world, the paper illustrates how registry-enabled insights can deliver measurable benefits. One case study shows how NEC enabled imaging-augmented evidence generation across 250+ patients, producing 23 device reports within 12 months, demonstrating the potential to accelerate timelines to as little as six to nine months.
With contributions from leaders in registries and real-world evidence – including Emin Aghayev, Senior Advisor at SpineTango, and Elaine Young and Chris Boulton from the National Joint Registry – the white paper highlights how structured partnerships can help the life sciences industry move faster while ensuring patient safety remains at the centre.
The full paper is available now, offering practical guidance on how to access registry-enabled real-world evidence at scale. Download the white paper here.
